Rare Autoimmune Optic Nerve Disease Research: Pioneering Cures

Led by the Chair of the Scientific Advisory Council for the Mellie J Foundation, this integral program consists of funding research that supports our mission to improve rare patients' lives by focusing on cutting-edge technology, treatments, and pioneering cures for rare autoimmune optic nerve diseases. If you would like to donate to fund research email rare@melliejfoundation.org.

Rare Supplemental Grants

This program supports current research at leading institutions that need supplemental grants to gather more data sets for rare autoimmune optic nerve diseases. The goal is to predict outcomes more accurately to improve patient diagnoses, and treatment plans, and find cures. If you would like to donate to fund rare supplemental grants email rare@melliejfoundation.org.

Rare Public Education Campaign

This program supports a public education campaign for rare autoimmune optic nerve diseases. Audiences include legislators, patients, patient advocates, healthcare professionals, and the general public.

Rare Advocates

In coalition with other rare disease advocacy groups in the USA and California, we meet with legislators to shape health policy at the federal and state level to improve health outcomes for rare patients. We are a proud member of the California Rare Disease Access Coalition.