Our Programs

Rare Autoimmune Optic Nerve Disease Research: Pioneering Cures

Led by the Chair of the Scientific Advisory Council for the Mellie J Foundation, this integral program consists of funding research that supports our mission to improve rare patients' lives by focusing on cutting-edge technology, treatments, and pioneering cures for rare autoimmune optic nerve diseases.

Rare Aware: Educational Videos for Hospital Emergency Departments

This program produces comprehensive educational videos, supporting materials, and resources for hospital emergency department doctors and staff to quickly identify the symptoms of rare autoimmune optic nerve diseases to improve outcomes for rare patients.

Rare Supplemental Grants

This program supports current research at leading institutions that need supplemental grants to gather more data sets for rare autoimmune optic nerve diseases. The goal is to predict outcomes more accurately to improve patient diagnoses, and treatment plans, and find cures.

Rare Public Education Campaign

This program supports a public education campaign for rare autoimmune optic nerve diseases.

Rare Podcast

This program supports an ongoing podcast featuring experts in neuroimmunology, neuro-ophthalmology, and patient advocacy.